What is FHIR (and why should I care)?

In my self-appointed role as ‘FHIR evangelist’ (some would say ‘FHIR Fanatic’) at Orion Health and HL7 New Zealand I’m often asked ‘what is FHIR, and why should I care’. Rather than trying to explain each time, I’m going to write a short post here, so I can refer people to it, rather than trying to remember all the good points at the time.

So, what is FHIR?

Well…

  • FHIR (Fast Health Interoperability Resources) is the latest interoperability standard from HL7, following on from Version 3. (Strictly speaking it builds on rather than replacing v3, but also pulls in ideas from other organizations such as openEHR or IHE).
  • FHIR has the fundamental concept of “Resources”, where a resource is the basic unit of interoperability – the smallest ‘thing’ that makes sense to talk about – such as a Patient, a Condition (Problem) or a Practitioner.
  • Resources have a number of common characteristics, including:
    • A small number of ‘core’ properties that most (80%) of systems currently support. Each property is a specific datatype (although some resources allow more than one datatype to be used for a property)
    • A standard extension mechanism that allows implementers to add new properties in a safe and discoverable way. (This is the lesson of version 2)
    • An ‘identity’ by which it can be saved, located & retrieved
    • A human readable component that summarizes the data in the resource for a human to read (This is the lesson of CDA).
  • Resources can be re-used across interoperability paradigms. You could receive (or save)  a resource via a REST service, and then package it in a Message or include it in a Document.
  • There is a built in versioning system. Each resource can have multiple versions, and there are mechanisms to retrieve the history of a specific resource, and/or a specific version.
  • The specification itself is on-line, and fully hyperlinked. You can link through from resource, to a property, to the datatype of that property. Where a particular terminology or code set has been defined for a property, you can hyperlink to that dataset. (Terminologies are a bit more tricky to link to).

Why should you care?

  • FHIR has been build with the needs of the Implementer in mind. We try to be as simple as possible, but no simpler.
  • This extends to the use of connectathons, where developers can try out ideas before being included in the specification.
  • Standard tooling can be used.
  • You can use XML or JSON representation.
  • Each resource has a specific validation schema / schematron (again, a lesson from CDA)
  • All the artifacts (including the schema) are automatically built using a build process (similar to a software build). This significantly improves the overall quality of the specification.
  • Each resource has multiple examples that shows how the resource can be used. The resources themselves are ‘round-tripped’ from XML -> JSON ->XML and validated as part of the build process to ensure accuracy.
  • FHIR (especially the JSON representation) is great for mobile development
  • There are number of open-source clients to make it even easier to use
  • There are also some test servers to test your work out on.
  • Lots of other people are looking very closely at FHIR

An example of a Patient resource is shown below. This one also has an embedded picture within it.


<?xml version="1.0" encoding="UTF-8"?>
 <Patient xmlns="http://hl7.org/fhir">

   <!-- Each extension is at the top of the resource. This one points to the embedded photo of Donald -->
   <extension>
     <url value="http://hl7.org/fhir/example-do-not-use#Patient.picture"/>
     <valueResource>
       <reference value="#pic1"/>
       <display value="Duck image"/>
     </valueResource>
   </extension>

   <!-- Here is the Human readible part...-->
   <text>
     <status value="generated"/>
     <div xmlns="http://www.w3.org/1999/xhtml">
       <p>Patient Donald DUCK @ Acme Healthcare, Inc. MR = 654321</p>
     </div>
   </text>

   <!-- Contained elements allow an 'anonymous' resource to be embedded. In this case the image -->
   <contained>
     <Binary id="pic1" contentType="image/gif">adads -- rest of b64 encoded image here....</Binary>
   </contained>

   <!-- The elements below this are the 'core' elements of the resource -->
   <identifier>
     <use value="usual"/>
     <label value="MRN"/>
     <system value="urn:oid:0.1.2.3.4.5.6.7"/>
     <value value="654321"/>
   </identifier>
   <name>
     <use value="official"/>
     <family value="Donald"/>
     <given value="Duck"/>
   </name>
   <gender>
     <coding>
       <system value="http://hl7.org/fhir/v3/AdministrativeGender"/>
       <code value="M"/>
       <display value="Male"/>
     </coding>
   </gender>
   <active value="true"/>
 </Patient>

Well, I hope I’ve answered the question of “what is FHIR and why should you care”. Feel free to leave any comments below.

Cheers…

In the beginning…

Looking back over the past year, I’ve given a number of talks on FHIR. I’ve also been lucky enough to have been sponsored by my employer – Orion Health – to speak at a number of overseas conferences, including CHIMA in China, and HIMSS Asia-Pac in Hong Kong.

In most of these presentations I’ve started by giving an overview of the HL7 Interoperability standards, and where FHIR fits into that family, including why it was developed in the first place. Sounds like a good topic for a blog post!

The first version of HL7 (which was actually  version 2) was developed around 1987 by Ed Hammond in response to a need to share health information within a healthcare enterprise. The name “HL7” stands for ‘Health Level 7’ – where the 7 refers to the 7th layer (applications) of the OSI model.

I asked Ed why the version was 2 and not 1 – he replied that there was a initially a version .5 that was more of a scoping version, and a version 1.0 that was demonstrated at a HIMSS conference. This was more what we would call a DSTU (Draft Standard for Trial Use) today. Version 2.0 was the first version that made it “into the wild”.

The standard become widely used – largely due to it’s relative simplicity, but also because it allowed individual implementers to define ‘extensions’ to the standards in the form of ‘Z-segments’ which allowed them to share data that had not yet been formally defined in the main HL7 standard.

However a number of issues developed over the years.

  • Implementers produced a proliferation of overlapping Z-segments that could only be understood by the the parties that defined them – usually a single sender and recipient.
  • People started using the defined fields within segments for unexpected purposes – for example if their particular implementation did not need to use a particular field for the defined purpose, they ‘re-used’ it for something else.
  • Individual segments got more and more fields added – with any of them optional

This led to the saying the ‘Once you’ve seen one HL7 v2 implementation –  you’ve seen one HL7 v2 implementation!’  Semantic interoperability – being able to communicate ‘meaning’ was really restricted to individual sets of trading partners who would agree in advance what the meaning of these ‘extended’ fields was.

In response to these issues, HL7 started work on version 3 around 1995. Version 3 created a common  ‘Reference Information Model’ and a standardized development process, from which the various HL7 artefacts were derived. It was an ambitious programme (and not without critics) as it attempted to provide a mechanism to share any clinical information without necessarily having to agree in advance what that information was. The first release was in 2005.

However, with the exception of CDA (Clinical Document Architecture), version 3 didn’t really take off. It was used in Canada (Health Infoway) and the UK (Connecting for health), but most people continued to use v2 for messaging needs, and CDA for documents (in fact – people started using CDA where a messaging approach was really required – as a document standard, CDA does not support workflow). There were a number of reasons for this.

  • Using v3 properly is hard. It is a very abstract standard, and you need to understand quite a bit about it to work with and extend the standard.
  • Development of new business  ‘domains’ was slow – 3-7 years to become ‘normative’ was not unusual.
  • All of the tooling to develop and publish standards needed to be custom built.
  • It has been said that v3 is designed to suit the needs of the modeller, not the implementer. For example, with the exception of CDA, there is no standardized XML schema across all v3 messages.
  • In most cases v2 continued to do the job – why change?
  • The world had moved on – real-time connectivity and the standards that support that (HTTP, XML, JSON, REST, ATOM and many others) were commonplace, as was the concept of “API’s” to support the electronic exchange of information.

Recognizing these issues, the HL7 Board commissioned a ‘fresh look’ at HL7 in 2011. The mandate was ‘What would we do if we were starting with healthcare interoperability from scratch today’? The team noted that:

  • HL7 doesn’t really have a ‘modern’ standard for, say, mobile application or cloud developers.
  • There was a lot of good work and thinking in v3 – it was just hard to get at it.
  • V2 remains enormously popular, yet is based on old technology (but it is simple to understand, and does support extensibility). A migration path is needed.
  • CDA is popular because it supports implementers:
    • There is a standard XML schema – that common tools can manipulate
    • It supports ‘incremental semantic interoperability’ through human readible text elements
    • There is a concise specification, a number of well defined Implementation guides with reference implementations and schematron validators
    • There were many implementations of CDA (and CCD – which is a type of CDA) internationally, and a body of knowledge that built up around it.
    • You don’t need to understand v3 to use it!
    • but – it does not support workflow, and it is designed for the Document paradigm.

Grahame Grieve (from Australia) had already been talking about a different approach – Resources For Healthcare – on his blog (health Intersections) and this was used as the basis to develop what was to become FHIR (Fast Health Interoperability Resources). It was presented at the May Working Group meeting in Vancouver, and quite literally was the star of the show. FHIR had arrived!

FHIR Contained Resources

I’ve been meaning to write a blog for some time.

In fact I started one a year or so back which I let drop (a common occurrence I suspect). I’ve also had some pressure from my colleagues at Orion Health (Thanks Mark & Sandra) and it was them that suggested this title – due to my passion for the new HL7 FHIR standard. When I mentioned the possible title to Grahame Grieve (the originator of FHIR), he started laughing – apparently in the old days when convicts were deported from England to Australia for relatively trivial offenses, word came back that Australia was a rather better place to live than England was at the time, so being deported there was a *good thing*. However, there was a fine line between being deported, and being hung (which is a *bad thing*). Turns out that the safest way was to set a hay stack on fire – and then ensure that you were caught. So the title has stuck…

Read more of this post